{"id":84946,"date":"2020-03-01T15:23:23","date_gmt":"2020-03-01T09:53:23","guid":{"rendered":"http:\/\/factly.forumias.com\/?p=14011"},"modified":"2020-03-01T15:23:23","modified_gmt":"2020-03-01T09:53:23","slug":"world-rare-disease-day","status":"publish","type":"post","link":"https:\/\/forumias.com\/blog\/world-rare-disease-day\/","title":{"rendered":"World Rare Disease Day"},"content":{"rendered":"\n<p><strong>News:<\/strong>The<strong> <\/strong>World Economic Forum has released a study ahead of Rare Disease Day which is observed on February 29 every year.<br><\/p>\n\n\n\n<p><strong>Facts:<\/strong><br><\/p>\n\n\n\n<p><strong>About Rare diseases:<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\"><li>A rare disease is a health condition of low prevalence that affects a small number of people compared with other prevalent diseases in the general population.<\/li><li>The most common rare diseases recorded in India are Haemophilia, Thalassemia, sickle-cell anaemia and primary immunodeficiency in children, auto-immune diseases among others.<\/li><\/ul>\n\n\n\n<p><strong>Key takeaways from the study:<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\"><li>475 million people are affected by rare disease worldwide and only 5% of people with a rare disease have access to treatment.<\/li><li>80% of rare diseases result from genetic or genomic variants meaning an individual is born with a rare disease.This results in 30% of children born with a rare disease dying before they reach their fifth birthday often without a diagnosis.<\/li><li>In India, there are around 56-72 million people affected due to rare diseases.<\/li><\/ul>\n\n\n\n<p><strong>Suggestions:<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\"><li>Establish a global framework for the secure sharing and aggregation of genomic and clinical data to diagnose and treat rare diseases at a global scale.<\/li><\/ul>\n","protected":false},"excerpt":{"rendered":"<p>News:The World Economic Forum has released a study ahead of Rare Disease Day which is observed on February 29 every year. Facts: About Rare diseases: A rare disease is a health condition of low prevalence that affects a small number of people compared with other prevalent diseases in the general population. The most common rare&hellip; <a class=\"more-link\" href=\"https:\/\/forumias.com\/blog\/world-rare-disease-day\/\">Continue reading <span class=\"screen-reader-text\">World Rare Disease Day<\/span><\/a><\/p>\n","protected":false},"author":61,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"footnotes":""},"categories":[956],"tags":[2058],"class_list":["post-84946","post","type-post","status-publish","format-standard","hentry","category-schemes-and-programs","tag-rare-disease","entry"],"jetpack_featured_media_url":"","views":{"total":0,"cached_at":"","cached_date":1704650185},"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/forumias.com\/blog\/wp-json\/wp\/v2\/posts\/84946","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/forumias.com\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/forumias.com\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/forumias.com\/blog\/wp-json\/wp\/v2\/users\/61"}],"replies":[{"embeddable":true,"href":"https:\/\/forumias.com\/blog\/wp-json\/wp\/v2\/comments?post=84946"}],"version-history":[{"count":0,"href":"https:\/\/forumias.com\/blog\/wp-json\/wp\/v2\/posts\/84946\/revisions"}],"wp:attachment":[{"href":"https:\/\/forumias.com\/blog\/wp-json\/wp\/v2\/media?parent=84946"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/forumias.com\/blog\/wp-json\/wp\/v2\/categories?post=84946"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/forumias.com\/blog\/wp-json\/wp\/v2\/tags?post=84946"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}