Going beyond customs: On full exemption from basic customs duty for drugs, food imported for treatment of rare diseases

Source– The post is based on the article “Going beyond customs: On full exemption from basic customs duty for drugs, food imported for treatment of rare diseases” published in “The Hindu” on 3rd April 2023. Syllabus: GS2- Issues related to development and management of health Relevance– Issues Related to rare diseases News– Centre has announced… Continue reading Going beyond customs: On full exemption from basic customs duty for drugs, food imported for treatment of rare diseases

Govt publishes policy for treatment of rare diseases

News: Union Ministry of Health and Family Welfare published a national policy for treatment of rare diseases, listing 450 diseases as rare. Facts: Rare Disease: It is a health condition of low prevalence that affects a small number of people compared with other prevalent diseases in the general population. Example: Haemophilia, Thalassemia, Sickle cell anaemia,… Continue reading Govt publishes policy for treatment of rare diseases

Patients with rare diseases wait for support

News:Recently, it has been reported that the majority of patients suffering from Lysosomal Storage Disorders (a rare disease) has been waiting for support from the Government. Facts: About Lysosomal Storage Disorders:  Lysosomal storage disorders are a group of more than 50 rare diseases. They affect the lysosome which is a structure in your cells that… Continue reading Patients with rare diseases wait for support

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